Z-Pizza Party

February 7, 2010 at 9:46 pm | In Adoption, Barton's Blogs, Megan's Blogs | Leave a Comment

Tuesday night we’re having a Pizza Party! We’ve heard from many of our friends, and are excited to be bringing our community closer together for a whole lot of fun. Z-Pizza in Raleigh will offer 20% for Family For Us Fundraising. Family For Us is our fundraising effort to bring our community into our efforts to expand our family.

While we are both strong-headed and determined to do everything ourselves, there are times when we have to admit we can’t do it all on our own. Because we are married and own our own business, we do not receive any benefits that assist us in the additional needs we may have as an inter-ability family.

Late this year, we are hoping to begin our process of expanding our family, through medical efforts, through adoption and if those don’t work, we are open foster care as well. An accessible van, additional help for Barton & for myself & other adaptable devices are the tools we need to be more independent & help us take care of a child.

It’s exciting to hear that many of our friends who have children, and even those who don’t are coming to our pizza party on Tuesday night. We hope that you can be a part of our process in creating community and having fun!!

ZPizza Flier


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Throwing Barton from His Wheelchair

February 7, 2010 at 9:44 pm | In Megan's Blogs, Ramblings, Wild Stories You Just Wouldn't Believe, wheelchairs | Leave a Comment
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Listening to Barton tell about our adventure with curb-cut snow drifts this morning reminded me of when I threw Barton out of his wheelchair. Yes, if we had had a video camera, we would have won a thousand dollars on Americas Funnies Home Video’s. Our friend had asked us to teach his martial arts class that Saturday morning, so we drove in rain just beyond the border in Mississippi. I had parked the car, but we realized that we needed to get to the other side of this field.

We made our way through the marshy field. In front of us, I could see this massive mud puddle, and I had the bright idea that if I gained speed, we could make it through the thick mud. I wasn’t a physics major, obviously.

So I gained speed, and we reached the mud. And the wheelchair stopped. And Barton didn’t. Holding onto the bag with all of our gear, and with a broke seatbelt, Barton flew face first into the mud. Within seconds someone else was there, and we were hauling Barton back up into his chair. I wiped the mud off of his face, trying not to laugh, but not being very successful.

I would love to say this was the only incident, but alas, there are others. I’m only lucky that with every story to be told, Barton ends up with a smile on his face.

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Wheelchairs & Ice Skates

February 7, 2010 at 9:42 pm | In Barton's Blogs, Ramblings, wheelchairs | Leave a Comment
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On the way to church this morning, Megan and I plowed through the last of the dwindling snow in the Raleigh streets. I carried Megan on my lap as I normally do, yet on nearly every street corner, there was several inches of snow that had almost magically collected at the foot of the curb cuts. These baby snowdrifts still stood about four inches tall making it practically impassable for my chair.

On the first couple of snowdrifts, I was able to manage a path that circumvented the snowy impediments. The last one, however, was another matter.

As we approached the curb cut, we both assessed the situation and decided that the only way to pass was to plow through, so at top speed, and still carrying Megan, I charged at what I thought was the lowest point in the drift. Snow flew everywhere, and with immediate deceleration from the impact, Megan almost went flying. Thank God we didn’t stop dead.

When I was a kid living in Chicago, I remember taking my wheelchair out on the ice rink and frozen parking lots play with others. My friend and I thought this was wonderful as we piled three or four other people on top of my chair as all of our weight increased how much and how far my chair would slide on the icy surface. Inevitably, several of my friends and the front half of my chair including my legs would end up buried in four or five-foot snow drifts at the edge of the ice. While this brought me hours of great entertainment as a kid, snow and ice in any form is not terribly conducive to life in a wheelchair. When I wasn’t serving as the neighborhood toboggan, I spent most of my winters indoors.

Last weekend when Raleigh was buried under a whole six inches of snow (yes, a whole six inches is enough to shut down this southern metropolis), I was brought back to those weeks of endless winters where I barely went outside except to get to and from school and wondered how it was I ever survived so much time indoors.

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Motorized Door Locks on a Snowy Morning

February 7, 2010 at 9:39 pm | In Marley & Me x2, Megan's Blogs, Ramblings | Leave a Comment
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Last week, Raleigh received over six inches of snow. Now, in Raleigh, we certainly aren’t prepared for a big snowstorm such as this. We admit that on Friday evening we went to the grocery store to stock up on food, water, and firewood.

The snow began falling Friday evening. Saturday morning, we woke up to drifts of snow covering the back porch and yard. Six am, and Basho was crying to get out. As usual, I cracked the back door. We have a motorized lock, and so the door is locked from the outside- all the time. (You see where this is going, don’t you?)

Basho with Snow Camouflage in last year's snow storm.

Both dogs scurried outside into the snow. Basho bounded in the snow, both paws sprawled out. Bear and Basho chased each other around the backyard, and they can get pretty rowdy. I knew what was coming when Bear knocked Basho into the backdoor, and by the time I reached it, the door was all ready slammed shut.

Barton was still in bed asleep, and I had n o choice but to walk down the hill to our neighbors house. Trying to control two black labs, excited by the new white cold stuff, was quite a challenge. I yanked on their collars, and we practically slid down the hill, since there was a thick layer of ice beneath the snow.

Our neighbor was nice enough to come to the door, and give us an extra copy of our key. We scrambled back up the hill, opening the door to the warmth inside. I haven’t locked myself out of our house in a long time, and it had to be snowing & ice when I did.

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It Takes a Village

January 19, 2010 at 4:43 am | In Adoption, Megan's Blogs, Our Love Story | Leave a Comment
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Yesterday after church, I had a coffee with our neighbors from when we were living in an apartment, just after we moved to Raleigh, NC. We just recently began attending this church because it is within walking distance from our house, has great accessibility, and has been so open and welcoming.

Barton and I have always known that having a family was an important part of our vision together. While we don’t know the exact timeline or method (medical, adoption, foster care), in the end, it doesn’t matter. It has been a long journey coming to an understanding of not being able to have children naturally, right away. We each processed the loss of the natural process and looked at what we felt comfortable/uncomfortable with as we moved forward. In a sense, it was very much like after my mother’s death. It put us in this place that was different and unspeakable to others. How do you even explain all of the spiritual, biological, relationship questions that we began to wade through. How difficult when we heard comments such as why would you want to take care of another woman’s child or you know you can’t give a child back. It has taken a long time to block all of the voices out and trust the path we are on.

Fishing with the Zaytowns

Barton fishing with our neighbors.

 

My neighbor talked about the need for community support, no matter what the situation. That we all need to rely on those around us for support whether it’s carpool, driving kids to school or a night off to themselves.

While many of our friends had concerns over how we would handle expanding our family, no one talked about the solutions. This last year, we’ve taken a good look at the missing pieces, what we can do ourselves to actively fill in the holes and where we need help. This last year, we’ve made drastic changes that hopefully will help us in sustaining a family later on down the road. These changes haven’t been easy, as it has meant that I spend time away from close friends outside of Raleigh to concentrate on building relationships closer to where we are.

It’s a very humbling experience to admit that we can’t do everything ourselves. Between Barton’s fire of independence and my stubbornness (in Alabama I was nicknamed Rhino at training), it’s hard for us to say we can’t do it all on our own.

Adaptive equipment

A wheelchair stroller.

We’ve identified three areas that we need assistance with when we expand our family: an accessible vehicle, adaptable devices for taking care of a child (for example an attachment for a baby carriage to a wheelchair), and additional assistance for Barton and myself.

For 2010, we’ve organized Family For Us Fundraisers, community fundraisers that we hope will strengthen our relationship to our community, and let’s face it, are fun! On February 9, 2010, we are having a Pizza Party at Zpizza at their Raleigh location. We’ll be there from 5-8pm. Mention Family for US and 20% of your total bill will be donated.

In addition, the first NCWN open Mic on February 26th will support Family For Us as well. Join us from 7:30-9:30pm at Calm & Sense in Raleigh.

As Barton and I think about expanding our family, we are also looking at ways to strengthen our relationship to the community. If Barton and I rely on the community for support, than it is our commitment to support events, activities and businesses within our local community as well.

Visit our website for more information & updates!

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Clearing Out Space

January 12, 2010 at 12:12 pm | In Megan's Blogs, Ramblings | Leave a Comment
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This holiday season, we traveled more than we thought we would, and we were busy seeing family, we got our Christmas tree just in the nick of time, and to be honest, we didn’t even make it to 9pm before we were fast asleep on New Year’s Eve. With all of the unexpected events this fall and winter, we needed some time to recover. In addition, we began clearing out space.

While Barton’s father and stepmother were here, we went through our closets to take advantage of the last donations of the year. Just after the left, I spent much time clearing out the backroom, that had gotten stagnant, not only with my own piles, but of papers and pictures from my grandparents. While I’m not finished, and I’m still working on how to archive material, organize my photography, and clear this space. We also looked at the blocks we still had, and began clearing, not just physical space but mind space as well. We began meditating together, holding hands.

Clearing space allows a better flow, to allow other things to come in. As we reflected on 2009 and began gearing up for the New Year, we began to look at what we wanted to accomplish, our goals and dreams for the next year. We looked at ways we could take steps to accomplish them.

Yesterday afternoon, for an hour, Barton and I wrote on our manuscript. Mind you, it had taken us four months to sit down together, get over the block that had arisen. At first, we sat on the couch, computer in hand, with two dogs beside us. Once they began getting rowdy, we had to kick them out and put the baby gate up. While we only wrote four paragraphs, it was an enriching experience, light, fun. And we are four paragraphs ahead of where we were four months ago or the day before.

Clearing out the space implies movement, movement to where, maybe the known, maybe the unknown. Taking this first step is the most important and the most courageous. It means letting go of what we know and allowing the flow to pull us along.


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New Year’s Excitement

January 7, 2010 at 7:30 pm | In Work | Leave a Comment
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 The New Year is always a time to start over, take a good look at your life, find areas that need attention, and do what’s needed to move toward balance. For some, it’s a great time to clean out and let unnecessary distractions drop away. For others, it may be the perfect time to take action around what they feel is lacking and change it. For me, it seems to be a bit of both in terms of figuring out how I can best serve others, both in my family and community, in a way that brings out my best.

With this, I’m very excited to announce the opening of Blooming Lotus Coaching, a life coaching practice dedicated to working with families touched by disability to enhance the independence of each member while encouraging alignment within the family as a whole. The mission for the practice is to enable people, with and without disabilities, to connect with, listen to, and act upon their innate wisdom and experiences in order to bring about a life of greater fulfillment for themselves. 

Here families will have the opportunity to learn positive self-expression tools, plan for the future, develop self advocacy skills, find way to approach a fulfilling life, and build community connections and other supports. Parents can focus on prioritizing the best support for your child, lean how and when to seek Early Intervention and find additional assessments, and interventions if they have young children while parents of older children may  choose to explore identifying underlying issues to find creative solutions, balancing personal and family needs, Differentiate between parenting and caregiving roles, determining when good intentions for support inhibit growth and independence, Finding confidence in your child’s abilities, and discerning how and when to let your child soar.

I invite you and those you know to visit http://www.cuttersword.com/blooming-lotus-coaching.html for more information.


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Driving on Thin Ice

January 4, 2010 at 11:02 am | In Megan's Blogs, Ramblings, Wild Stories You Just Wouldn't Believe | 2 Comments
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A few days before we drove down to Alabama for my grandmother’s memorial service, we watched the weather intently as the threat of possible wintery weather was all over the airwaves. We knew that we would need to get out, before the bad weather hit. We rearranged our schedule for Friday, though it was still noon before we pulled out onto the highway.

Once we hit Charlotte, the snow began falling in big fluffy flakes. However, once we passed the city, the roads began to feel slippery and icy. Though the reports claimed the roads were treated, we slowed to a 10 mph pace and still, I felt the car slipping on the roads.

What made matters worse was I had to stop to go to the bathroom. Now Barton & I have jokes about our bladders- he is the camelback and I, I am a pea. So we’re driving through a coating of ice on the roads, huge flakes of snow, and we have to stop. Once I get out of the car, I realize how slippery the street is. Cautiously, we make it through this patch of snow and ice in North and South Carolina and finally make it down to Atlanta, after eight hours on the road, for the night.

Once we arrived, I had to print out a few items that I had literally dropped once the weather was going to be so bad. The rest of the travel legs went off without as much excitement.

This New Years Eve, we crashed at home. I was determined not to get in a car and drive. Although I did venture out to the grocery store, fighting last minute New Year’s Eve traffic, I have to say I was much relieved we were not trying to drive anywhere as our travel adventures seem to find us.


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Coming Home

December 22, 2009 at 4:45 pm | In Ramblings | 1 Comment
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This weekend, Barton and I drove to Tuscaloosa, Alabama for my grandmother’s memorial service. While we were caught in the snow and ice in Charlotte, we did finally make it. I read the piece below at the service on Sunday. When Barton and I would visit my grandmother, we would have the most incredible exchanges, most of them without any words. 

There’s almost more that I don’t know about my grandmother than what I do. I don’t know what it was like for her growing up, being a minister’s wife, or raising three children in times of uncertainty and change. I didn’t know her in her younger years, a Southern Woman, wearing magnificent dresses and style of the time. I didn’t see her when she taught classes to children or Body Recall to seniors.

But what I do know are precious moments in time, and so today I will link some of those memories together, little jewels like pearls on a necklace.

I remember my grandmother reading to me as a child, and when I would visit Tuscaloosa, we would sit in the living room upstairs reading or talking. She would make frocks for me to wear, but I was much more interested in wearing overalls. I would know my grandmother by her conversations with my mother in the kitchen making dinner or the lunches after church when granddad would retire downstairs.

If we went out, we would go to 5th Street Diner, or if it was a special occasion, Cypress Inn. It would always take us some time to determine the best place for us to sit, usually by the glass windows overlooking the water.

As time progressed, there were memories of uncertainty, concern and anguish over her fading memory. There were also moments of humor and laughter, like the time when granddad came home to a house full of Beannie Babies, little stuffed animals. Now I can tell you that my mother was as much of an instigator as grandmom in this adventure. The downstairs Christmas tree that was filled with Beanie Babies was a symbol of their spirit, laughter and life.

When granddad had surgery, grandmom’s fire and spunk was made known to us all. But when we took her to granddad’s room in recovery, they sat next to each other in silence. While we left to give them some privacy, for just a moment, a milla-second really, I noticed granddad pat her on the knee and on the face. I learned more about endearing love in this moment than nearly at any other time in my life.

Grandmom knew my husband Barton not by his name, but by his face. We would walk into her room, and she would pat Barton’s goatee and laugh. Every visit would begin in this way. We were there with her, wherever she was in that moment. The past didn’t matter, the future did’t matter, only that present moment.

Once, she advised me that when I got married, not to pay any attention to what my husband thought or said, just to do what I wanted to do anyway. She told me that while granddad was downstairs or away at church, she would dance. Now while I haven’t completely taken her advice, what I believe she meant was not to worry about what other people thought or said. She blazed her own path, and whether it was known or hidden, she lived an independent life.

Everyone here may have different memories, that of a mother, a grandmother, a church member, a teacher, a friend. Today we honor and celebrate these memories so that we may live our lives fully, in the present moment, as she did.

My mother wrote to me one time saying, “Your path isn’t easy, it is made of jewels milked with stones that make you strong and able.” This is how I remember both my grandmother and my grandfather.


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Walking Through the Storm

December 16, 2009 at 7:25 am | In Our Love Story, Ramblings, The Nitty-Gritty, Wild Stories You Just Wouldn't Believe | Leave a Comment
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Crashing Waves

Waves on Hatteras Island.

 

Recently, we were talking about celebrating our fifth year anniversary with the adventures in Hatteras Island with the storms of Ida and the Nor’eastern. We had taken the accessible van we had rented a few miles north, supposedly to higher ground. When we realized we would be evacuating by ferry, we knew we would have to retrieve the van. I called the Island Taxi, who called just less than a mile from our van saying the flooding was too bad. She turned around and headed back.

We knew we needed to get the van so we could get on the next ferry evacuating off of the island, so immediately, I changed clothes and dug out Barton’s water shoes- thank God we brought them! Barton made me take my cell phone and watched me from the balcony as I began the hike through the water-covered streets to pick up the van. 

Overwash on the roads.

Overwash on the roads.

 

At that moment, the rain had stopped, but the wind was still pretty fierce. Several times I stopped, thinking there were sirens going off, but then realized it was only the wind. I climbed the washed banks of the dunes, navigating a path along the side of the road.

Every so often Barton would call me on the cell- how are you doing? He would tell me about cars or obstacles I needed to navigate through. I got focused very quickly- the faster I walked, the sooner I would get there.

Several days before, we walked the same path, and I would calculate how much further I had to go by landmarks we had passed the previous day. We had also picked out small little round briers from Bear’s feet. Twice I walked through these patches, and picked the briers off of the water shoes and my ankles.

Man O'War

Man O'War littered the beach after the storm.

 

Also, jellyfish were blown in onto the beach from the storms. Not realizing why my ankle was stinging, I later found I had been stung by a Man O’War, nasty little buggers.

As I got closer to our van, I get somewhat concerned because I was walking what I was going to be driving back through. On the other side of the street, a wooden cross bridge was not floating in the road. Yet, I knew I couldn’t stop.

Why am I including this fun little escapade in our blog? There were so many lessons we took from this. We knew what we needed to do and wasted no time getting ready and were focused on doing what needed to be done. We didn’t pay attention to what other people said or thought, we just got on the path and did what we needed to do. We are both still learning how to apply this lesson in other areas of our lives. Barton had my back- he watched me the entire way and called to check in and to give a head’s up on what I needed to watch out for.

Crashing Waves in the Wind

Crashing Waves in the Wind

 

Was my life in eminent danger? Maybe not. But who knows what was around the corner. The metaphor of the storm is one we are still processing. We were full of awe at the power of nature, every time a wave would crash, we couldn’t help but just feel so humbled.


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